Wednesday, 30 October 2013
nearly 13 months in
and this rebound or second wave flare hasnt subsided and it feels like it gathering momentum . seriously deflating to be back in the mire of tsw . My hands are the worst theyve been since month 4 . my face and neck are fluctuating with mini flares that come on suddenly . the deep itch is back on my chest and forearms . last week the skin on my feet peeled off like the way you peel an orange . joints are aching again and glands are slightly swolen . i could go on with more symptoms but i just cant be bothered . this is a real setback . i knew it was going to happen and i prepared myself mentaly but its a hard place to be when youve felt better for a few months .
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I'm sorry you are in a difficult place. My husband is in week one of this TSW journey after 25 years of topical and oral steroids. I know we have a long difficult road ahead. I don't know if you've heard of psychodermatology. They address the mind/body connection. Don't know if it will help but I doubt it could hurt. I plan on getting my husband hooked up with a psychodermatologist in our area because I know it's going to be a long difficult road. I thank you for sharing your journey... it's helpful to read and know we are not alone in this.
ReplyDeleteHere is a link to an article on psychodermatology:
ReplyDeletehttp://www.psychologytoday.com/blog/skin-deep/201004/can-psychodermatology-help-my-eczema
hi johnboy.
ReplyDeletesorry to hear that you are still suffering mate. As you know i was unable to log onto your blog, not sure what happened there, so i would have been in touch earlier.
I started my withdrawal on the 1st July as i had planned and i am suffering as you can well imagine.
I haven't started blogging yet as i didn't have the strength or the enthusiasm to start, i need a kick up the backside.
have been keeping records of how i feel and have been taking photos so i may start putting it all down on my blog soon!
Take care fella and hope your latest flare is short and that you return to enjoying normal skin soon!!
Siegfried
www.35yearsofhell.blogspot.co.uk
Hi Sieg
ReplyDeleteSorry for the late reply mate . Loads going on here . I'm so glad that you went for it mate and i can imagine that things have been realy tough for you . Ive been in that place mate and it sucks . So now , you must be nearly five months in and i hope that the initial flare is begining to calm down slightly ? . I hope so anyway . I remember that it was at the 5 month stage , that i began to feel a little bit better . T he itch subsided a bit and i wasnt as red as i was in the first 5 months . So how are you feeling now ? . I hope that you were able to carry on with day to day things as i know that was one of your main concerns . Its one of the worst things about the withdrawel because most people have no choice . Glad to hear you documented it and i look forward to seeing your blog update . The last few days have been a bit better for me and i feel that this rebound flare is on its way out , another stage over with , i hope haha . I hope you are feeling a bit better though and i have to say that when the 5 month is there for you , you will feel a bit of reward for your efforts mate . Just to add mate , this second (rebound flare ) started at month 11 for me and although it brought me down a bit , it is no were near as bad as the initial flare back when i started . The hardest part of it was mentally . I knew it would come but it still got to me just because i had felt so much better for a few months .But like i said ,its not half as bad as the first stage . Keep going mate , your doing a great thing for sure and soon enough we will both be healed from this nightmare that has plagued our lives for so long . God Bless , JB .
Hi Sharon . Its always interesting to hear different approaches to coping with the effects of TSW. In my honest opinion i think that all you can do to help the symptoms is helpfull in its own way . Relaxation and meditation is a great way to ease the suffering we go through . I wish your husband all the very best in his withdrawell process , it will be hard but with support from family and friends he will get through it . God Bless . JB .
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